My Lords, I will speak also to Amendments 57ZB and 57ZC.
The Care Bill currently being debated in another place is making major changes to adult social care law. We have already put those changes through this House. It brings forward important and welcome new rights for adults caring for other adults. This Bill already strengthens the rights of young carers. These new rights will make it easier for other carers to have the impact of caring on them in their care assessment and to receive support services. I commend the Government most heartily and sincerely for the progress that we have made on this issue. However, as I said when it was discussed in Committee, these changes leave parent carers of disabled children as the only group of carers
who will be left with the lesser rights to assessment and support provided in old legislation that will be largely superseded by the new Bills.
The purpose of these amendments is to bring the rights of parents of disabled children into line with the rights of other carers and ensure that they are consolidated into primary legislation where they can be better understood and used. Amendments 57ZA and 57ZB update the existing law that gives parents of disabled children under 18 the right to have a carer’s assessment that looks at the impact of caring on them—the parent carers. It updates and aligns these rights with the changes being brought forward in the Care Bill for adult carers of adults, and in this Bill for young carers. Amendment 57ZC replicates the new duty to promote well-being that is being introduced through the Care Bill in relation to adult carers of adults, and applies this same duty to parents caring for disabled children.
As a result of the Government’s changes, parents of disabled children will be the only group of carers with lesser rights to assessment and support, as the rights of other adult carers and young carers are consolidated and strengthened. Their rights will be left in rump legislation as the rest of the Carers Acts are repealed. These amendments are supported by the Law Commission and the Joint Committee on Human Rights.
I know that the aim of the Government’s legislative reform is to produce a clearer, consolidated social care system that is easier for professionals and individuals to use. However, I must point out that this aim will not be realised without consolidation and enhancement of parent carer rights. Without this, frontline professionals will have to navigate complex legislation in order to assess and provide support to those caring for children. There is little or no guidance in place to support social workers to use the existing rights for carers to receive assessments, currently sitting in three different Acts, each taken through Parliament by Back-Benchers with cross-party support. I was one of those Back-Benchers on a couple of occasions.
A lack of guidance and understanding by children’s social services already means that parents of disabled children find it hard to have their needs as carers recognised. Parent carers are being passed between adult and children’s services and are falling through the cracks. I was most grateful to the Minister for agreeing to meet last week with the noble Baroness, Lady Tyler, myself and several parent carers and representatives of Carers UK. He was able to hear at first hand about—and understand—their current difficulties and duties. These and other parent carers whom I have met simply do not understand why they are not subject to the same rights as others. They told the Minister this in no uncertain terms. I very much hope that he will either agree to these amendments or agree to bring something back at Third Reading.
I turn briefly to the need for a well-being duty for parent carers. The Care Bill introduces a new statutory principle that embeds the promotion of well-being as the driving force underpinning the provision of care and support. This new principle is widely welcomed. I cannot overemphasise how strongly this has been welcomed and how important it is. The well-being duty in the Care Bill does not, however, apply to
parent carers. Unless we put it in here, it will not apply to them at all. They face different challenges to other parents, but they have often struggled to establish rights as individuals on a par with other carers, and they are at particular risk of having their own rights as individuals overlooked. Too often they are seen only as parents, and their needs as carers are not identified or supported.
At this late hour I will not give many of the examples that I planned to give. However, I will end with the words of a particular parent carer, who said that a carer’s assessment,
“would help me loads, I feel very alone with massive pressure on my shoulders, I desperately need a key worker for my son, and a lot more time for me before I crack up … I lost my job because I was taking too much time away from work … caring has caused me nothing but sadness and loss of all dignity”.
I hope that we will be able to have a positive response from the Minister, and I beg to move.