It is a pleasure to speak in this debate and to welcome the Bill, which covers such a broad range of areas. I hope Members will forgive me if I focus on special educational needs, as so many others have done.
I know from my own life story how important it is to get this right. I was one of the pre-1981 report children whose parents had to fight to get me into a special school, and then fight again to get me back into a mainstream school a few years later. The special school was not far from the Minister’s own constituency, in Hebden Green. When I was in the mainstream school, my parents had to fight to get the speech therapy I needed to make the most of being in that mainstream school.
It was with some distress and dismay that when I first got elected to this House, I found that the first three cases of my very first constituency surgery were all about parents fighting for their children to get the special educational help they needed from their schools. Thirty years on, nothing much seemed to have changed. That is why I welcome the Bill, as it starts to introduce some level of change. I pay particular tribute to my hon. Friend the Member for Brent Central (Sarah Teather), who is sadly no longer in her place. What she did with her Green Paper was to raise expectations, perhaps even to create a rod for the Government’s own back in a strange way. None the less, she needs to be congratulated on that.
I know not just from my own life story, but from what I see on the ground in Blackpool, how important this issue is. When one of our council officers—the head of inclusion and access—gave evidence during the Education Committee’s pre-legislative scrutiny process, she explained why this matters so much in Blackpool, where we have such a high transient population, with four times as many young people than the national average entering the town already having a statement—9.8% versus 2.8%. Yet Blackpool manages not to make it an adversarial experience; in fact, it has fewer tribunals than the national average. I can see that situation working itself out in my constituency surgeries and in my casework.
As always with legislation, the temptation is to focus on the elements that one is not completely happy with. I will try to resist that temptation and look at the wider picture. I am very privileged to chair the all-party group on young disabled people. What strikes me in that role is that society no longer puts a lid on expectations for our young disabled people and tries to limit what they can achieve. If anything, the only lid that is placed on their expectations is the bureaucracy in the system. Society is changing, but the structures of governance need to change as well to enable them to keep pace. That is why the Bill is so important.
When I meet groups of these people, I am struck by the fact that so many of them do not just want to go into work when they reach 18—they want to go on to university, to go and live their lives. I welcome what the Education Committee and the Minister have said about those who are in apprenticeships or are not in education, employment or training having access to EHC—education, health and care—plans. However, I have a twinge of disappointment about the fact that apparently those who want to go on to university will not have access to those plans. I share the Committee’s concern that we
need greater clarity over what this provision should look like for the 19 to 25 age group and how the local offer should be structured in this regard. We have made great efforts in the draft Care and Support Bill to ensure that those who wish to attend university can take their social care package with them from their home local authority to where they seek to go to university. That was a bold and ambitious move that excited many young people, and I want to make sure that what we do in this Bill has the same level of sophistication.
Equally, I urge Ministers to look again at the issue I raised in an intervention—how we treat disabled young people who have a health need but no specific educational need. I realise that it is very difficult to place duties on the NHS. None the less, having had such a revolutionary Bill that is going to change the landscape, it would be a shame if we missed this opportunity to get it right for all our young people.
One of the big things that excited me about the Green Paper was that it finally tackled the issue of transition—the cliff edge that many young people, and their families, come to when they transfer from child services to adult services, whether they be wheelchair services, community and mental health services, or so many other services. As people reach the age of 16, child services start to tail off and there is never any confidence that adult services will then kick in. People get very concerned about that. I urge Ministers to embrace this opportunity to resolve that cliff edge. Families have a fear of the unknown because of the threat of uncertainty and fragmentation. On my reading of the Bill, children with health needs but not educational needs will not get an EHC plan. That is wrong given the spirit of the Green Paper.
I support charities such as Together for Short Lives, which represents the children’s hospice sector, and the Communications Trust, which represents people with augmentative and alternative communication, where interaction between health care and education is not just important but crucial to the role played by the machines that assist them.
I should like finally to focus on clause 69, which seeks to exclude a particular group of people for whom we, as legislators, have responsibility—people in custody in the youth justice system. Again, on my reading of the Bill—I am happy to be corrected—those in youth custody will be specifically excluded from having an EHC plan and will be frozen in a no man’s land.