UK Parliament / Open data

Data Protection Bill [HL]

My Lords, the Data Protection Act was introduced in 1998. In those days, Facebook, Google and Uber did not exist, Amazon was barely four years old, Apple was tottering under the imminent threat of bankruptcy, search engines were rudimentary, as was the internet itself, and it would be another nine years until the iPhone would be launched. It was, indeed, a very different world. While I welcome the Bill, it remains a fact that when it becomes an Act next year it will be 20 years since its predecessor was enacted. Information and digital technology are growing exponentially. No other industry in the history of the world has even come close to this rate of growth. Legislation needs to match and anticipate the speed of these developments. Certainly, we cannot wait until 2037 for the next Data Protection Act.

Today I am going to raise three issues, which I would like the Minister to respond to. They all centre on the dominant and predatory behaviour of the American big tech giants. I will give your Lordships a striking example of such behaviour from one of them: Apple. In an ideal world, I would like every Member here who has an iPhone to take it out and turn it on, but that probably contravenes the Standing Orders of your Lordships’ House. So I will do the next best thing: I will set out five iPhone directions and, in the cool of the evening, when noble Lords have Hansard in front of them, they can replicate what I am now going to demonstrate.

Click on Settings, then Privacy, then Location Services. Then scroll all the way down until you see System Services, and then scroll halfway down and click on something called Significant Locations. If you are a little behind the times and do not have iOS 11, it is called Frequent Locations. You will probably be asked for a password. Then you will see History and a list of locations. Click on any one of them. Your Lordships will be staggered by what is revealed: every single location that you have visited in the past month—when you arrived, when you left, how long you stayed—all this very private and confidential information is starkly displayed. Who gave Apple permission to store this information about me on my iPhone? It is the default setting, but Apple never asked me. It will argue, of course, that it is private information and it has no access to it—maybe. If you think about it, the opportunities for snooping on people very close to you are endless and dangerous. Now the latest iPhone, the iPhone 8, has facial recognition. It does not take much imagination to work out how somebody could get access to a close member of your family and find out where they have been for the past month, without their permission to do it.

I think it was the noble Baroness, Lady Kidron, who spoke about Apple and its terms and conditions. She said that they were longer than “Hamlet”. I read that the iTunes terms and conditions were longer than “Macbeth”. Well, “Macbeth” or “Hamlet”, whatever it is, it is an awful lot of words. Of course, you have no opportunity to change those terms and conditions. You either agree or disagree. If you disagree, you cannot use the phone. So what choice do you have?

I see this as typical big tech behaviour. These companies run the world according to their rules, not ours. I have long campaigned against the cavalier approach of big tech companies in all aspects of business and personal life. These include Facebook, Amazon, Microsoft, Google and, of course, Apple. I was going to make some quip about the west-coast climate and the breezes of the west coast, but I guess with the news of the past two days that is probably not a good thing to be doing. Big tech companies have become mega-libertarians, positioning themselves above Governments and other regulators. They say they are good citizens and abide by the law. They have corporate mantras which say, “Do no evil”, but they stash away hundreds of billions of stateless, untaxed dollars. They promote end-to-end encryption. They are disingenuous when foreign Governments try to influence democratic elections. Perhaps they do no evil, but neither are they the model citizens they say they are.

So full marks to EU Commissioner Margrethe Vestager for bringing Apple, Google and Amazon to task, and full marks to President Macron for his efforts to set up an EU-wide equalisation tax to ensure that corporation tax is based on revenue, not creative accounting. I know that this is a DCMS Bill and international taxation is outside the Minister’s brief, but I have heard the Prime Minister criticise these tax dodges by big tech so I ask him or his colleagues in the Treasury: will the Government support the French President in this campaign?

I now turn to another area which is giving me great concern, which is digital health and health information in general. One of the great treasures we have in this

country concerns our population’s health records. The NHS has been in existence since 1948 and in those 70 years the data of tens of millions of patients have been amassed. They are called longitudinal data, and they are a treasure trove. Such data can be instrumental in developing drugs and advanced medical treatment. Few other countries have aggregated such comprehensive health data. It puts us in pole position. However, in 2016 Royal Free London NHS Foundation Trust sold its rights to its data to a company called DeepMind, a subsidiary of—yes, noble Lords have guessed it—Google. The records of 1.6 million people were handed over. In June this year, Taunton and Somerset NHS Foundation Trust signed a similar deal with DeepMind. The data are being used to create a healthcare app called Streams, an alert, diagnosis and detection system for acute kidney injury, and who can object to that? However, patients have not consented to their personal data being used in this way.

Ms Elizabeth Denham, the Information Commissioner, has said that the Royal Free should have been more transparent and that DeepMind failed to comply with the existing Data Protection Act, but the issue is much graver than not complying with the Act. I do not know this for sure, but if I had to bet on who negotiated the better deal, Google or the Royal Free, I know where my money would be. DeepMind will make a fortune. I put this to the Minister: does he agree that NHS patient data are a massive national asset that should be protected? Does he agree that this mass of patient data should not be sold outright in an uncontrolled form to third parties? I know the NHS is strapped for cash, but there are many better ways of maximising returns. One way would be for NHS records to be anonymised and then licensed rather than sold outright, as is common with much intellectual property. I also believe that the NHS should have equity participation in the profits generated by the application of this information. After all, to use the vernacular of venture capital, it, too, has skin in the game.

As today’s debate has shown, there are fundamental questions that need to be answered. I have posed three. First, what protection will we have to stop companies such as Apple storing private data without our express permission? Secondly, will the UK support the French President in his quest for an equalisation tax aimed at big tech? Finally, how can we protect key strategic data, such as digital health, from being acquired without our permission by the likes of Google?

8.48 pm

About this proceeding contribution

Reference

785 cc195-7 

Session

2017-19

Chamber / Committee

House of Lords chamber
Back to top