My Lords, I support the noble Baroness, Lady Wilkins. At the end of the last debate that we had on this Bill, I asked the Minister to explain how the extra funding that would be made available actually would reach those who needed it. She said that she would write to me. I do not know if I have missed that letter or whether there has not yet been time to produce it; however, I look forward to it.
I think that it is quite complicated, but I want to ask for something in relation to the way that local authorities are struggling to meet their commitments at present. I think that I said then that it is far easier if parents understand what is and is not available and are not misled into thinking that they can have more than is possible, rather than having massive aspirations. Of course I wish that the local authorities had funding to meet every child’s needs, but if that is not possible I think that it needs to be clear.
I move on to my Amendment 107, which is grouped curiously with this amendment. It would be far simpler for the Government to accept and implement. It relates to personal budgets. On page 25, line 2, I would like to insert,
“arrangements to assist young people and parents in managing a personal budget should they choose one”.
Personal budgets have been a great liberator for many adults and families, but for others they have caused extraordinary difficulty. Those of us who work in both the adult and children’s fields have seen in the adult field how many people have found extraordinary problems in managing employment and the financial complexities of budgets. Families are making it clear that they require support to manage personal budgets, and parents with experience of direct payments have spoken of difficulties that they have had in finding, recruiting and CRB-checking good staff, managing money and transactions with the local authority, identifying quality services to purchase, and co-ordinating a package of care. Currently, only 25% of local authorities provide key workers to help manage payments. I find that extraordinary. This leaves families to manage the often burdensome responsibilities of direct payments alone. I hope that discussion around this amendment will help us to better understand the Government’s thinking about the support that they envisage local authorities will provide for those families who opt for personal budgets. Does the Minister accept that all families should have some access to support?
I have a quick case study. As you know, on the whole I do not go in for detailed anecdotes, but I think that this story really does illustrate the issue. Oscar
lives in north London with his parents and two siblings. He is about to turn 18. He has autism and learning difficulties. His parents have been receiving direct payments to pay for respite care for the last eight years. His mother explains how difficult it can be to find the right support to buy with direct payments, and to “jump through hoops” to account for them:
“16 months ago our local council agreed to pay for one weekend’s respite care each month, but it has taken a considerable amount of time to agree how to provide this. It has only been in the last two months that we’ve actually been able to use the direct payments to get the support we need.
As Oscar was approaching adulthood, it seemed appropriate for us to try to find him a residential placement for his respite breaks. We hoped that this would help equip him with additional independence skills and that he would enjoy spending time in a new environment. However, when we visited local options it was clear that they were not able to meet Oscar’s complex needs. We decided that the weekend respite would have to take place in our home.
Oscar needs two-to-one support and in a house with two other children this is a challenge to accommodate.
Having two extra adults in our home for a whole weekend has a significant impact on all of us and is confusing for Oscar who wants to spend time with us. But it’s not only space that is the issue. Knowing where to find suitable staff who are equipped to support Oscar has always been difficult, and to cover a whole weekend at least four staff are needed.
I had asked the Council for a list of local carers which they said they would provide, but this never arrived. It is a huge and stressful burden for parents, who already have more than enough to cope with, to have to recruit, interview and train up staff themselves. We are always vulnerable to staff leaving after a few months for better paid work, leaving Oscar very unsettled and us totally unsupported.
For many years I didn’t know who to talk to at the Council about any aspect of this as Oscar didn’t have a named social worker and no one would return my calls. As Oscar is now approaching his 18th birthday, he has now been allocated a social worker and this has made a big difference. However, for many years we felt we were floundering on our own, receiving the occasional official letter threatening action because of some perceived fault on our part.
The Council have now agreed to employ Dimensions, a not-for-profit organisation who specialise in providing services for people with learning difficulties and autism. Together we are now trying to recruit and train a team of four so that we will always have support, even if staff are ill or on holiday”.
4.45 pm
The mother said that she did not struggle with managing the technical financial aspect of direct payments, although she knew that some families got lost in all the details. She added:
“With no one to phone for advice, and so little choice of service providers, it’s a minefield”.
I read out the story of that woman because it focuses on how if she had had someone at the beginning and it was the duty of the local authority to ensure that she had help and support, it would have been cheaper. She would not have been running through all those different people. She would not be getting the local authority responding inappropriately. It made my heart joyful, as noble Lords can imagine, when she said the social worker made a real difference. Amendment 107 is a simple amendment to focus the issue. I have many more examples, but I shall give the Committee only the one.