I beg to move,
That this House has considered World Down Syndrome Day.
I am grateful to have secured this debate, and I thank colleagues from all parties for their support in being able to do so. Two days ago I was honoured and privileged to be able to speak on behalf of the United Kingdom at the United Nations in New York on the 12th World Down Syndrome Day. It was an acknowledgement of the United Kingdom’s role as the country that has been the first to legislate in this area, of which we should be extremely proud. It was important that we took that opportunity to make the case.
When we passed the Down Syndrome Act 2022, it was a recognition of the strength of our electoral system. With the first-past-the-post system, whatever its handicaps, we are real constituency MPs with real constituents, and the fact that we are exposed to the complex problems they have enables us to be responsive to their needs and them to know who to go to when they need help with the problems they face. I also think that passing this legislation was a recognition of something we do not always do as politicians. One of the intrinsic problems in a democratic system is that we tend to get more credit for dealing with a crisis than preventing one. One of the key elements of this legislation is that it shows that Parliament can anticipate problems before they become a serious crisis-ridden issue. I will come back to that, if I may.
I thank all the charities associated with Down syndrome for the work they have done since the passage of the legislation, and I thank all those voluntary groups who helped with the consultation. I particularly thank the National Down Syndrome Policy Group, not least for its support for our function in Parliament, which I was unable to attend due to being in New York. I thank my hon. Friend the Member for Meon Valley (Mrs Drummond) who stood in so expertly to chair such a successful event.
The theme for World Down Syndrome Day this year was “With Us Not For Us”, and thinking about legal capacity and supported decision making is incredibly important.
We all expect and take for granted that we can make decisions about our lives—from where we live and whom we live with to what we study and where we work—and because we take these choices for granted, we must not forget that other people do not necessarily have the ability to do so. It is therefore absolutely right that people with Down syndrome are involved in all the decisions that affect their lives.
As I said when I was in New York, when a child is born with an extra copy of their 21st chromosome, they enter a different path in life from the rest of the population and so, inevitably, do their families, who will face different challenges. Those challenges come, as we all know, in the form of medical problems, educational needs and long-term care challenges. The consequential change in life expectancy was one of the main reasons that we passed the legislation in the first place. I believe that every individual with Down syndrome has the same right to life, quality of life, dignity and independence that the rest of the population take for granted.