UK Parliament / Open data

Autism Bill

Proceeding contribution from Anne Milton (Conservative) in the House of Commons on Friday, 19 June 2009. It occurred during Debate on bills on Autism Bill.
I was always aware of the danger that this morning's speeches would sound a little more like an Oscar ceremony than anything else, and I am afraid that I will only add to that. None the less, I say to my children and to my colleagues that when one does something well, one should be proud of it. It should be used as an opportunity to understand better how one can do things better in future. I therefore want to associate myself with all the comments made by my hon. Friend the Member for Chesham and Amersham (Mrs. Gillan). This Bill has indeed shown Parliament at its cross-party best, sharing and joining together in a drive to improve the lives of people with autism. At a time when people are so angry with politicians, this Bill is not only a huge landmark for people with autism, their families and their communities, but might be a small chink of light for Parliament itself. I also want to pay tribute to my hon. Friend the Member for Tiverton and Honiton (Angela Browning), who has been a voice on this matter for a long time—since long before I ever arrived in the House. I pay tribute to the all-party group, the National Autistic Society and many others, including Ministers. The Government, having originally resisted the Bill, have swung all their efforts behind it and have been remarkably and notably gracious in their retreat. I want to take this opportunity to pay tribute to Surrey county council. It is one of those councils that everybody loves to hate, but it is cited in the Department of Health's consultation document as an example of good practice:""The County Autism Group and autism lead have developed a network of 80 ASC champions across services in all sectors in Surrey. These champions have six months' training and mentoring and then help cascade this training to their team. Champions are supported to network and share good practice across services. Assessment of this process showed that it had led to positive outcomes for individuals…In addition, the county group and autism lead have supported Surrey County Council and Surrey and Borders Foundation Trust to jointly develop an ASC training pathway with different levels of training for staff in different services."" The danger today is that, having highlighted the huge lack of services and of unmet need, we will lose the small pockets—there are some—where there is good practice and where innovative approaches are being taken. The hon. Member for Erewash (Liz Blackman), who openly admitted a change of mind, paid significant tribute to others, but I want to pay tribute to her for graciously changing her mind and throwing her weight behind the Bill. She referred to many statistics, and I will repeat some of them because they cannot be mentioned too often. There are more than half a million people with autism in the UK, and they struggle to gain access to the services they need. Outcomes for such people are extremely poor: only 15 per cent. of adults with autism are in full-time work, almost half still live with their parents, and more than a third have developed serious mental health problems. A lack of ready access to services has a huge impact, not only on them but on their families and carers. As many Members have said, the parents often worry about their children's future, when they will no longer be able to support them. Older parents carry around a huge burden, worrying what will happen to their children when they die. Some 70 per cent. of children with autism have one additional psychiatric illness, and almost half have two or more. A quarter have self-harmed or have suicidal thoughts. If we look at the rise elsewhere in the number of children who self-harm, we see that the figure is likely to increase. The figures are truly shocking. If we spill out a load of figures, there is a danger that people will get figure-blind, and their eyes will glaze over. If we have any members of the press still sitting in the Press Gallery, I ask them to take note of some of the figures and to take them on board. The Bill, as amended by the Government, puts a duty on the Secretary of State to introduce a strategy for improving outcomes for adults with autism, accompanied by statutory guidance for local authorities and NHS bodies. We hope that, if the Bill is passed, it will be a catalyst for huge progress in meeting the needs of the country's adults with autism. In many instances, the Bill as amended goes well beyond the original measure. It is in that regard that the cross-party working, and the efforts of my hon. Friend the Member for Chesham and Amersham and many others, have been so effective. We are talking about access to diagnosis, needs assessment, transition planning—a crucial area, and one of many areas where people may fall through the holes in the net—strategic planning and support services, and local partnerships and co-operation. I should like to highlight six or seven key issues. When the Minister sums up, I hope she will address some of the issues on which there remain questions in some people's heads. On data collection and the need to identify people with autism, the National Autistic Society's comparison showing how hard-to-reach groups become easy-to-ignore groups was quite haunting. The key point is that groups of people can no longer be easy to ignore. They might remain hard to reach, but we can no longer ignore them.

About this proceeding contribution

Reference

494 c560-1 

Session

2008-09

Chamber / Committee

House of Commons chamber

Legislation

Autism Bill 2008-09
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